Monday, August 5, 2013

Monday Monday......

We got to the hospital "first thing" this morning, 7:45 and went strait to the urology clinic.  Apparently as Dr. Fox (the ped urologist)  is new to NMCP so is this pediatric specialty and the clinic is not yet set up except for the correct size BP cuff.  The corpsmen in the clinic were a litte "uncomfortable" with Ella.  It was almost comical.  That said everyone was beyond accommodating to us, understanding our anxiety and especially Ella's anxiety in regards to needles.

There was no official MRI in the schedule but they squeezed her in, gave her the OK to eat lunch and let her do it without sedation.   She went back around 12 and after the first set of pictures the pediatric radiologist, Dr. Carter, came to tell me she was holding as still as "stone" but they were going to go ahead and start the IV because they needed the contrast.  They fulfilled our plea/request for some EMLA cream prior to the IV and they made it happen.  Took her back in around 1 and she came out finished at 2.

Few things about today:
- Ella stayed really really still.  She did amazing.
- Before the contrast images, the radiologist did tell me he saw what they needed to see.  It's not as concerning to him as it is Dr. Fox (the urologist) but it is something that shouldn't be there.  What they looked at in other imaging suggested "it" was inside the kidney, these images and the CTs are helping them understand if in fact that is true or if it's outside the kidney and more involving adrenal tissue rather than kidney.   His words "not as concerning" to him as it is to Dr. Fox got my hopes up.  So I'm nervous about that.  However, Ella is symptom free other than her BP being mildly high is perfectly healthy.
-The team of urologists and nephrologists in the area have agreed to look at Ella's case on Thursday with all the imaging done thus far.  The only thing missing is blood work that won't be back until next week in which they are looking for mentanephrines.
- Ella was in there with Jon so I don't know first hand how long it all took with the MRI machine working, but seriously, once again can't be more thankful for our healthcare.  All these tests have to be outrageous.
-Rudy stayed home with my mother-in-law and I came home to a much cleaner house than I left.  We are so lucky to have her.  She's the absolute best.

That's all I know.  Now we wait some more.  They told us we will get a call next week to get an appointment for next week, I'm expecting a call sooner just because that's how it's been rolling out.

I'm seeing my OB on Thursday, hoping this baby show is getting on the road.  I think this baby boy has dropped, BUT physically I feel better now than I have my entire pregnancy.

Again, thanks for all your thoughts and prayers.  I woke up in the middle of the night with a great sense of peace after falling asleep full of anxiety.


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